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Diabetics Are Hacking Their Own Insulin Pumps

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There is a revolution in the Type 1 diabetes community and thousands of people are now hacking their insulin pumps for better blood sugar management. CNBC's Erin Black, who was diagnosed with Type 1 diabetes 20 years ago, decided to try out the hacked system. Here's what happened. Type 1 diabetes is a disease that affects more than 1.2 million Americans. I'm one of them. It's a disease that impairs the body's ability to produce the hormone insulin, which normally comes from the pancreas. So insulin has to be injected. Managing blood sugars can be very difficult, and patients use a pump to help mimic the activity of the pancreas. However, pumps don't automatically adjust insulin levels for diabetics. And the manual process is tedious and can be dangerous. But a few years ago, people figured out how to hack their insulin pumps to make them automatically adjust insulin levels more precisely. » Subscribe to CNBC: http://cnb.cx/SubscribeCNBC About CNBC: From 'Wall Street' to 'Main Street' to award winning original documentaries and Reality TV series, CNBC has you covered. Experience special sneak peeks of your favorite shows, exclusive video and more. Connect with CNBC News Online Get the latest news: http://www.cnbc.com/ Follow CNBC on LinkedIn: https://cnb.cx/LinkedInCNBC Follow CNBC News on Facebook: http://cnb.cx/LikeCNBC Follow CNBC News on Twitter: http://cnb.cx/FollowCNBC Follow CNBC News on Google+: http://cnb.cx/PlusCNBC Follow CNBC News on Instagram: http://cnb.cx/InstagramCNBC #CNBC #CNBCExplores Hacking Diabetes With This DIY Artificial Pancreas
Category: News & Politics
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Text Comments (3605)
LEEDAQ (20 hours ago)
i'm sure that family will disappear very soon
Nick Gallucci (1 day ago)
Bro these people definalty should have attended this
danny Torres (1 day ago)
They shouldn’t let people with defects have kids that way no more people will get them and we could save money and time
Cody'sLab (2 days ago)
This is so cool!
maggie adams (2 days ago)
yall better watch out the diabetics are breaking the simulation
informationtolearn 11 (3 days ago)
I hope they put encryption.
Rocnfire (4 days ago)
What of your phone dies? Would it stop?
SoulFire (4 days ago)
Can they attach one to my brain to regulate serotonin?
Shall NotWither (5 days ago)
To be fair this type of system could be used for almost any continual drip drug...
eth3rl0rds (5 days ago)
That _Mike Hill (vp medtronics)_ TOTALLY sounds like a pharma jerk who born to rip off the patients!
infinitecanadian (6 days ago)
‘Cure in 50 years’? Yeah right. How many times did they say that about diseases?
enriko Dunev (6 days ago)
you do not use the word hack by its intention
Felipe (7 days ago)
she has "diabetic" tatooed on her wrist smh
Juan P (7 days ago)
I thought they had hacked the device to be able to inject heroin 😂
Kattywampus (7 days ago)
Hackers and Gofundme are how many americans survive
Han Bulban (7 days ago)
Why do ppl have to hack and create something like this that helps them? Why don’t drug companies that create these devices produce devices that regulate your insulting automatically. Really pathetic world we live in our medical systems are so outdated and corrupt
enzo galvão (7 days ago)
It's like modyfying your car, but you have a shitty car that you have to test for oil 24/7 and will blow up if you don't.
aberselbernh (7 days ago)
and then it fails and youre dead
potato master (7 days ago)
How can you be a diabetic and a hacker at the same time? Smh pick a profession its not that hard.
Elgon 2003 (7 days ago)
Wireless and user friendly interfaces are great but you can't forget that wireless or Bluetooth can be jammed or hacked and pretty interfaces bring more coding problems and more need to debug etc!
Chris Hansen (8 days ago)
Ok I finally watched it you happy now youtube
Justin B (8 days ago)
Yhy the FDA will not pass it it is simple it is a secret $$$$$$$$$!!!!!!!!! Is the only reason if a fue people die who cares as long as thay make the cash and people suffer thay have people by the balls if it doesn't make me money nobody can get it kinda like God
Frank Fanelli (8 days ago)
This is extremely complex and making this video will encourage people who are uneducated to try and build this complex hardware/software combo and cause harm to their children
Frank Fanelli (8 days ago)
but i guess the goal is to do that anyways. Thats why it costs $7000 for the $50 device in the first place.
Frank Fanelli (8 days ago)
This DIY thing is a terrible idea. Its controlled by radio signal which can have interference easily. It can controlled and manipulated by external sources easily. What if the thing kicks into high gear while your sleeping and loads you up with all of the insulin possible. What if your phone dies. What if android has an update while your sleeping? Putting your life in that hands of an app is the dumbest thing I have ever heard of.
Frank Fanelli (8 days ago)
This is extremely complex and making this video will encourage people who are uneducated to try and build this complex hardware/software combo and cause harm to their children
Frank Fanelli (8 days ago)
America is so screwed.
Jami Christine (9 days ago)
The FDA doesn't approve possible life-saving clinical trials that will help to cure cancer because they make money off of chemotherapy. So they deem the clinical trials "unsafe". Yet everybody wonders why people are turning to weed for their pain instead of taking over the counter meds that cost so much money. So many people are stealing because they can't afford it and then blame the person who stole it even though they never look at the situation and why the price is so damn high. Only in america does this type of shit happen.
FunnyVirus (9 days ago)
Phone *dies* girl oh no
HighThereGuys TV (9 days ago)
1:09, I am no doctor but I am sure insulin goes into the subcutaneous (subq) layer aka yo fatness, however she is giving herself it in the deltoid which tends to be intramuscular (IM). Muscles have a greater blood supply which allows the medication to get into the blood stream faster then fat. You can do it, but its not usual and comes with risks
Brooke White (9 days ago)
...basically the FDA is behind af..
Mikkel Petersen (9 days ago)
if this helps people, i think its fantastic, but the fact that some people now see dollar signs in their eyes instead of the morale of actually helping people makes me sick... i really hope these people who have this disease would be able to live a healthy and worthy life that they want to live. and then NO ONE should be able to charge them money for wanting to live a good life.
CryMiner (10 days ago)
sorry, all my fault
Rick Zavaleta (10 days ago)
Junho Son (10 days ago)
Here's a good enough cure that works for most people: "STOP EATING TONS OF SUGAR"
Jessica Hutcheson (8 days ago)
Junho Son that only works for type 2 diabetes. This video is covering type 1 diabetics.
Razal Mind (11 days ago)
Just eat curry leave it stimulating the insulant.sorry i dont use drugs.just nature.
Fin iPad (11 days ago)
Diphy Grayi (12 days ago)
Some countries have free healthcare, can you guys believe that?
Juicedgaming (12 days ago)
All well and good till they make an app and some one hacks the app and crashes a few thousand people.
George David (13 days ago)
For me is outrageous why the users had to do it and not a manufacturer of medical equipment. I mean is a logic feedback system... you don't need to be a genius to figure that out. This shows that actually they don't give a fuck.. they don't give a fuck on their profits either because such a system could be marketed at a way higher price. The second thing I don't understand why is freeware. I mean the engineer who came up with this idea lost a very good business. Third, I'm very happy for people suffering from this condition. Diabetes is a curse and if they now can live better, I'm very happy for them!
Bulgar SexShop (13 days ago)
really useful video thanks
Intrepid Intervenor (14 days ago)
Open source is the ultimate source of good products
Moe Ryan (14 days ago)
Also don’t forget that 7000$ DOESNT include the insulin. That’s a separate purchase needed for the pump. Without insurance that’s about 1000$ a month added on. 1000$ a month for something that most people can properly produce on their own. That you absolutely NEED to have for basic survival.
Mr-Bledi (14 days ago)
i would rather trust the open source than their closed fda system for a simple fact that if there is any bug, anyone could contribute and fix it much quicker for a simple fact that there will be much more data by users implemented
Traktakaffe (15 days ago)
"grabs on to norwegian passport" - if god is a thing, then usa must be hell
Spikey Plant (15 days ago)
Companies and hospitals don't owe anyone anything. They expect compensation for goods and services.. edit: "goods and"
Axxesload (16 days ago)
Yeah Yeah oh yeah
zeppelinmilk (17 days ago)
That guy at 4:30ish looks like he is on cocaine. Really adds a nice touch, how the drug companies pusher-man is tweaking while telling people not to hack their products.
juhu34 (17 days ago)
7000 dollars for whats basically an arduino, sure, sounds like a great deal!
Red Phoenix (17 days ago)
@1:31 FOSS is boss. ;)
KudosK (17 days ago)
US is getting greedy again
ABEL (20 days ago)
This is so fucking stupid this shouldn't be such an issue to begin with. Props to the people creating the FYI system and the man who created the org is a saint now to me
Alex Boyanov (20 days ago)
ok I know its safe and that it has been tested and all but a DIY insulin pump that actually keeps you alive doesn't sound like a good idea
hyou zan ren (20 days ago)
Dont worry! Big pharma lobbies will pass laws to make it ilegal for NOT buying it!
Unedited Gamer (21 days ago)
I can kinda relate to this, my family has a long history of some random genetic disease that effects our blood sugar. It's not diabetes but it's close (the opposite in fact) our body produces to much insulin so we suffer from low blood sugar. It is a form of Hypoglycemia, my grandmother had it, my aunt, my mother, and even I got it but it's odd as a child and teen I never had it but once I hit about 20 it became noticeable as I knew my mom dealt with it and I could tell it was the same as she would describe it and I was having the same problems. It all starts with this feeling of tiredness, which leads to this lighter than air body feeling while having trouble moving (like walking) which ultimately can lead to lightheadedness and than passing. It's only happened a few times (passing out) but it's always the same I feel super weak and my body feels very lite, it's a odd feeling and I do not mean lite in the sense of easy to move but more a nervous system feeling you get this feeling of floating almost like early stages of motion sickness. None the less while not diabetes it's similar with having to monitor my blood sugar but for the most part just eating each meal can go a long way towards preventing it. I generally try to keep junk food around as it is almost always a fast fix but it can happen suddenly and when it does you are often unprepared (like while taking a shower) but once it starts to take effect you need to deal with it as it really doesn't go away best case you can just sit down and eat/drink something sugary and give it 5 or so mins.
Prob_io (21 days ago)
7000 fuckin dollars!?
nathanac2013 (22 days ago)
Cant feel your bs when you sleep ????????? I know I can itll wake me up from a dead sleep
VixonHQ (22 days ago)
7K for a basic insulin pump. But a iphone X and a macbook cost less. smh
PH4T JOKER (22 days ago)
7000 for something that cost about 150 dollars too make. That's insurance ducking up medical prices for ya. Artificial inflated price and yet we still except it .
Xeonerable (23 days ago)
The first two things I can think of that we should try to eliminate with CRISPR gene editing tech is diabetes and food allergies.
Hugo Lindberg (22 days ago)
Oh yeah oh yeah
Dawid (23 days ago)
Program disfunction insert 99999999 insulin rip
Tea (23 days ago)
The US healthcare seems very bad compared to ours in Sweden.
Capt'n 01 (23 days ago)
This is like putting an apple logo on a water bottle and selling it for 500 dollars
Lee Coziar (25 days ago)
My dog cracked my pump giving me overexcited kisses. I really don’t know what to do with the ridiculous co pay 😳 it’s the new one that corrects itself AKA closed loop artificial pancreas but insurance won’t cover CGMS supplies so I’ve never been able to use it that way. Type 1 since 1977, I was diagnosed in second grade. Not a lot of people can say they have had it for over 4 decades.
RabixYT (25 days ago)
Hacking our lives
Diabetic Dude (27 days ago)
This was genius
Adam Arzo (27 days ago)
Ahahahaha why would anyone listen to big pharma telling you not to do something? If they're saying that, it's because they're losing money. Medtronics just cares about money and that's why they stopped you modding their devices. They couldn't make money from it. IF they cared about the patient their device would not be $7000 especially when mass manufacture of these would be extremely cheaper than $150....LOL!!
hallobre (28 days ago)
This is the difference between some countries that have healthcare, and America that has * medical business * If you have health issues, dollar signs pop up in their eyes.
Something Something (28 days ago)
SweetasSugar42 (28 days ago)
I'm going to attempt this for the second time in a couple of months. I'll be the fourth in my country to become a 'looper'. I've only just turned 18 and my first attempt was at age 15 but I'm sick of waiting and living a half life. I'm willing to take the risk of a non-FDA tested technology because I'm not going to waste the rest of my short life chasing after technology that works against me.
Gorda Towschwu (28 days ago)
Raspberry pi zero is the best
Tornade (28 days ago)
Diabetes is not a joke people can die anytime my cousin (a she) has diabetes type 1. And a few weeks ago she went to the hospital because she didn't get enough *insulin*.
Josh Murray (28 days ago)
I have the 670 G pump or the 7000$ pump but luckily my insurance covered it for me. I have to say that having this system is amazing.
Tarento (28 days ago)
2019: *hacking insulin pumps* 2050: *_hacking toasters_*
1ong1ashes (29 days ago)
What happens if your phone stops working? I suppose you just have to take very good care of your phone? And I wonder how reliable the bluetooth is, since it often doesn't work when playing music in the car, and you want something very reliable for a medical device like this. Nevertheless, it seems to be the best option available for people with this problem.
Bob Treduis (29 days ago)
No link in desc
jlb591 (30 days ago)
Now if we can find a hack for cheap insulin!!!!!!
knish (1 month ago)
this really goes to show how great open source technology is
FadedG0 (1 month ago)
Radio interference could be an issue
[RGT] TheDarkForce (1 month ago)
FDA copied others idea?
MusZico13 (1 month ago)
Ohhh Apple.
elias altenberg (1 month ago)
raspberry pi based, nice.
Reborn In Rationality (1 month ago)
Now we get to the insidious side of it...... Was it a 'flaw' in the machine that allowed external input or just an undocumented 'feature'... and you state that the 'flaw' was fixed a couple of years after people started to hack their own systems.... and given the discrepancies in price, it seems, to the uninvolved observer (i.e me), that they just saw a way to make more profit by removing the said 'function'.... of course they also have the excuse that it's to remove liability of incorrect hacking.... What a horrible situation.. HOWEVER if can be done DIY for 120 bucks.. then it ABSOLUTELY must be possible to do it 'officially' for a whole bloody lot less that 7k... profitmongering off the sick has always made me want to vomit.
Reborn In Rationality (1 month ago)
Really? Is technology reliable enough to pass such a responsibility on to it? All it takes is a bug or a hitch.. it is obviously inconvenient to do it manually, but surely it's the only way to make sure. I'm not sure I would trust a machine to make that kind of decision for me. I DO FULLY ADMIT THOUGH, I am lucky enough not to suffer from diabetes, I have no idea (I can only imagine) of the impact to living a normal unfettered life diabetes has on a person/family life and could fully accept to some that a bit of risk may infact be fully justified. I hope you can remain on top of all of this and continue with health levels that are conducive to an active life.
Google User (1 month ago)
I love open source.
Marie Fischer (1 month ago)
Pharma companies should not be allowed to sell things at more than 5x the price it takes to manufacture. I only say that much because it does take money to research this stuff. But more than that is just absurd, and literally killing people. Not everyone can afford $7000 for the system that makes it so much easier to just LIVE. Can you really be fine with your life when your greed makes other people unable to live with any quality of life? And don't just say they should work harder for money. No. When you've got the conditions that causes you to need the medications, often you can't work very hard or you risk extreme pain or even death. 5x manufacture price AT MOST.
Subscribe To Me For No Reason (1 month ago)
wait... WHAT!
M B (1 month ago)
Micah Lee (1 month ago)
I'm free market but healthcare is out of control and needs heavy regulation to bring the cost down
Didaka D (1 month ago)
Why if the DIY option 150& but the other one like ~47 times more expensive? Just goes to show ya that big corporations are in it just for the money.
oscar nordh (1 month ago)
You didn't build it, you assembled it, nice try tho
Jeuel Sapad (1 month ago)
Please use imuregen instead so you can restore your b cells in your pan reas and be insulin independent again. Just pm me
yeah oh (1 month ago)
Us civilians are way better than the peoole who make our stuff
Hblog (1 month ago)
if its like modding a car then im gonna do it 100%. Subi gang
El P (1 month ago)
Cyberpunk 2020
IWasBrokeNowImNot (1 month ago)
Money is all that matters
Bryan Bui (1 month ago)
They don’t make them automatic for a reason, devices can mess up, and you could die from a little mistake by this system.
Muhammad Shahmi (9 days ago)
They made it already
temporary (1 month ago)
Then a hacker kills you
jonzuk (1 month ago)
This makes me wanna cry
Vincent Tang (1 month ago)
What sort of control algorithm does it use?
Christian Balderas (1 month ago)
Id let myself die i dont do needles
Leandro (1 month ago)
the company assumes the risks (of being processed in case of failure) supported with a thousand of lawyers and take your money...